Sagittal Synostosis study

The skull is made from different plates of bones separated by joints, which allow the bones of the skull to overlap slightly so that the head can pass through the birth canal during delivery. Sagittal synostosis occurs when the sagittal suture (the joint on the skull that runs down the back of the head) fuses too early.

The research conducted on sagittal synostosis in relation to whether people experience cognitive, behavioural or psychological difficulties later in life is diverse, and the evidence-base for clinicians is unclear. The results from this study will help guide clinical decisions about the management of children with sagittal synostosis in the future.

Who can participate?

1. Individuals between 2½ and 65 years old who have been diagnosed with isolated sagittal synostosis.

2. Healthy children and adults, between 2½ and 65 years old to be part of the reference group. The information collected from individuals in this group will be compared to information from people who have been diagnosed with sagittal synostosis.

What will participants do?

The study has two elements - online questionnaires and face-to-face assessments. Ideally, participants will undertake both elements of the study however may choose to participate in just one.

1. Behavioural and psychological questionnaires

This aspect of the study involves the completion of a series of online, age-appropriate questionnaires. These questionnaires are expected to take approximately 60 - 90 minutes per individual (or family if the person with sagittal synostosis is a child) and can be completed at home at your convenience. Participants will receive a $40 gift card as a thank you, in addition to a summary report of each questionnaire's results.

2. Cognitive testing

This face-to-face section of the study involves a series of tests assessing areas such as verbal ability and memory. This section is expected to take each person approximately 60 - 90 minutes. Participants will receive a $60 gift card as a thank you and as reimbursement for any expenses incurred, in addition to a summary report of results. 

For more information and to get involved: 

Phone Dr Amanda Osborn on 0493 151 304, email sagittalstudy@adelaide.edu.au, or register your interest below.

This study has been approved by the Human Research Ethics Committee at the University of Adelaide. If you have any questions or problems associated with the practical aspects of your participation in the project, you can consult the Principal Investigator on 8313 5228. If you wish to speak with an independent person regarding concerns or a complaint, please contact the Human Research Ethics Committee’s Secretariat on 8313 6028.