Partner Organisations
The PCRC is a collaborative research program engaging researchers from the University of Adelaide, Flinders University, and the University of South Australia, Western Sydney University and La Trobe University, local area health networks and agencies within SA Health, and not-for-profit community organisations and advocacy groups.
A key focus for this project and the research team is to work closely with a number of partner organisations and translate research outcomes and actions throughout and at the conclusion of the project via these developing networks.
The Hospital Research Foundation Group Palliative Care
Palliative care has been an important focus area for The Hospital Research Foundation (THRF) Group, focusing on providing quality palliative care support and research for all South Australians, regardless of where they live.
Since the successful merger of The Hospital Research Foundation (THRF) Group and Laurel Palliative Care Foundation in 2020, the organisation has been able to deliver even more community support through the expansion of services and investment of millions into vital research.
THRF Group – Palliative Care strives to increase palliative care services across South Australian public hospitals to maximise impact and raise awareness about this essential area of patient care.
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Academic
University of Adelaide
The University of Adelaide’s School of Public Health aims to prevent disease and promote health in populations through outstanding, internationally recognised research and training. The School of Public Health is within the University of Adelaide’s Faculty of Health and Medical Sciences which is a world leader in health education and transformative research. This research is consistently ranked in the top 1% of Universities internationally.
The University of Adelaide is a member of Australia’s prestigious Group of Eight, a coalition of Australia’s most research-intensive institutions. With more than 4000 research staff and students working together, supported by modern infrastructure and an innovative culture, the University of Adelaide has all the ingredients to tackle global research challenges and deliver positive impacts.
Flinders University
The Caring Futures Institute (CFI), based in the College of Nursing and Health Sciences at Flinders University, is Australia’s first fully dedicated research organisation for the study of self-care and caring solutions.
The CFI has an exceptional research environment with over 100 researchers conducting multi-disciplinary and translational research to enhance the delivery of quality, safe and efficient health and social care.
The institute’s close collaboration with leading care organisations, health professionals, community partners and consumers ensures translation of findings into policy and practice to positively impact people’s lives.
University of South Australia
The University of South Australia is Australia’s University of Enterprise on the global stage, agile and astute, known for relevance, equity and excellence.
We educate and prepare global learners from all backgrounds, instilling professional skills and knowledge, and capacity and drive for lifelong learning.
We undertake research that is inspired by global challenges and opportunities, delivers economic and social benefits, and which informs our teaching.
We operate through a partnered, end-user informed culture of teaching and research with a commitment to outstanding service, continuous improvement and sustainability.
La Trobe University
The Department of Public Health, based within the School of Psychology and Public Health at La Trobe University, prioritises teaching and research in health promoting end-of-life-care (EOLC), and the social determinants of health during the end-of-life (EOL).
Through the Palliative Care Unit, the Department delivers education and training which supports the Victorian Department of Health and Human Services priorities surrounding palliative care, as evidenced by the postgraduate specialisation: Ageing Strategy and Policy. The Unit aims to re-engage local communities as active partners in providing EOLC and supporting EOL decision-making, and build capacity for EOLC outside the health system.
Western Sydney University
Western Sydney University is a modern, forward-thinking university, located at the heart of Australia’s fastest-growing and economically significant region – Western Sydney. Boasting 11 campuses – many in Western Sydney central business district locations – and more than 200,000 alumni, 49,500 students, and 3,500 staff, the University has 14 Schools with an array of well-designed programs and degrees, carefully structured to meet the demands of future industry.
Western Sydney University is a research-led university, recognised for its capacity to conduct successful collaborative and high-impact research. The University was named number one in the world for its social, ecological, and economic impact in the latest Times Higher Education (THE) University Impact Rankings. The University placed first overall worldwide and first in Australia in the prestigious annual rankings, which assess universities on their commitment to the United Nations’ Sustainable Development Goals (SDGs). The rankings are based on universities’ teaching, research, outreach, and stewardship.
The Western Sydney University School of Business engages with partners to develop and promote multidisciplinary research. Integrating industry practice with theoretical knowledge, the School’s innovative research enriches teaching, fosters social and economic outcomes, and has local, national and international relevance. This enables the School to make a positive impact in the world.
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Advisory groups
Commission on Excellence & Innovation in Health / Statewide Palliative Care Clinical Network
The Statewide Palliative Care Clinical Network (the Network) was established in 2019 at the Commission on Excellence and Innovation in Health (CEIH). They collaborated with the Department of Health and Wellbeing (DHW) to develop the Strategic Framework for Palliative Care in South Australia. This work was completed in December 2021.
The Network is unique as it is the only network that is co-led by a consumer, Kathryn Hourigan and a clinician, Dr Peter Allcroft. This co-leadership recognises the relevance of consumer perspectives in leading improvement and innovation in Palliative Care and reinforces CEIH commitment to foster consumer engagement.
At the start of 2022, the Network determined a new direction and have focused their work around understanding “What would it be like to experience the best possible palliative care in South Australia?”
From this, the Network identified two key priority areas:
- Workforce sustainability
- Navigation of services
These have been established as two working groups, comprising of consumers and healthcare professionals from different specialties (Community Care, Rural services, Emergency Departments, Palliative Care services, SAAS and Equipment to name a few). Their aim is to develop means to promote the best possible palliative care experience.
The Network has also partnered with the CEIH to develop a Palliative Care Patient Reported Measure for South Australia. This work is just beginning but will be an important opportunity for the Network to engage with the Statewide Patient Reported Measures implementation led by CEIH.
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Community
ACH Group
ACH Group is a not-for-profit organisation in South Australia that is dedicated to supporting older people to thrive. ACH Group’s 1700 specialist staff and hundreds of volunteers share our belief that older people should be valued and respected, connected to their communities and in control of their lives. This mindset drives our every action to empower older people, to support them to lead a good life and continue to make a contribution to family, community and society.
ACH Group offers a wide range of services including retirement and residential options, domestic, personal and nursing care in the home, respite choices and short-term transition services.
Multicultural Communities Council of SA (MCCSA)
The Multicultural Communities Council of SA (MCCSA) represents, supports and advocates on behalf of culturally and linguistically diverse (CALD) communities. It provides a wide range of services for individuals and communities from CALD backgrounds.
Our vision is for South Australia to be a truly multicultural and harmonious society, which celebrates diversity, promotes acceptance and allows all communities to share in its prosperity.
Palliative Care SA
We are South Australia's Peak Body in Palliative Care. PCSA is dedicated to promoting quality palliative care and access for all South Australians through advocacy, information provision and education to build community capacity and service responsiveness.
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Health
Central Adelaide Palliative Care Service (CAPCS) / Central Adelaide Local Health Network (CALHN)
Central Adelaide Palliative Care Service (CAPCS) is an integrated, specialist palliative care service across the Central Adelaide Local Health Network (CALHN) catchment area, including the Royal Adelaide Hospital (RAH), The Queen Elizabeth Hospital (TQEH) and the local communities.
CAPCS also supports several rural and peri-urban palliative care services, including the Adelaide Hills, Murray-Mallee, Pt Augusta, Whyalla and Pt Lincoln.
CAPCS aims to enhance quality of life of people with a life-limiting illness, their families and carers, offering services including information about end-of-life, symptom assessment and management, psychosocial support, coordination of community-based services and access to a multidisciplinary team of health care professionals.
Northern Adelaide Local Health Network (NALHN)
Northern Adelaide Local Health Network (NALHN) provides acute and community services to northern metropolitan Adelaide and tertiary services to a wider catchment area. Hospitals and services within the NALHN include the Lyell McEwin Hospital (LMH), Modbury Hospital, a range of sub-acute and primary health care services and a number of state-wide services.
Northern Adelaide Palliative Services (NAPS) brings together the Modbury Hospital’s Modbury Palliative Care Unit and Lyell McEwin palliative care teams, providing end-of-life support and services across the NALHN catchment area. NAPS aims to enhance quality of life of people with a life-limiting illness, their families and carers, offering services including information about end-of-life, symptom assessment and management, psychosocial support, coordination of community based services and access to a multidisciplinary team of health care professionals.
Flinders & Upper North Local Health Network (FUN-LHN)
Flinders and Upper North Local Health Network (FUN-LHN) provides a wide range of public acute, residential aged care, community health and mental health services to South Australians based in regions. FUN-LHN delivers a comprehensive range of health services throughout six public hospitals/health services in regional South Australia, according to population needs, focusing on integrating its service delivery with metropolitan hospitals and other service providers in regional locations.
Barossa Hills Fleurieu Local Health Network (BHF-LHN)
Barossa Hills Fleurieu Local Health Network (BHF-LHN) provides a wide range of public acute, residential aged care, community health and mental health services to the communities of Barossa, Adelaide Hills, Fleurieu and Kangaroo Island. BHF-LHN delivers a comprehensive range of health services throughout 11 public hospitals/health services in regional South Australia, according to population needs, focussing on integrating its service delivery with metropolitan hospitals and other service providers in regional locations.