Get Involved

Help us learn how to better support families as they seek the care they need.

Elderly lady in wheelchair being pushed by carer

Are you...

  • Over 18 years?
  • Living in South Australia?
  • Living with a long-term illness?
  • Finding you need a bit of help to care for yourself?
    Or...
  • Do you provide care for someone like this?

Our study

A research team from the University of Adelaide are hoping to better understand what it is like for people making decisions about where and how they will be cared for, as it gets harder for them to care for themselves. 

This study will follow someone over time who is living with a life-limiting illness and their carer, for between 12 and 18 months. We hope to learn how we can better support families to get the care they all need at this time.

As part of this study, both of you (separately or together) would meet about every three months for 30-90 minutes, when and where it suits you, to talk with one of our researchers about your experiences, expectations, and needs. We will provide a $100 gift voucher to say thank you for your time and thoughts.

Contact us

If you are interested in knowing more, please contact Jaklin Eliott:

Email: jaklin.eliott@adelaide.edu.au
Phone: 8313 3855

Alternatively, you can complete our online form and a member of our research team will be in touch.

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The study has been approved by the Human Research Ethics Committee at the University of Adelaide (Approval number H-2023-163). This research project will be conducted according to the NHMRC National Statement on Ethical Conduct in Human Research 2007 (Updated 2018). If you have questions or problems associated with the practical aspects of your participation in the project or wish to raise a concern or complaint about the project, then please talk with Dr Jaklin Eliott, as the Principal Investigator. If you wish to speak with an independent person regarding concerns or a complaint, the University’s policy on research involving human participants, or your rights as a participant, please contact the Human Research Ethics Committee’s Secretariat on:

Phone: +61 8 8313 6028             
Email:  hrec@adelaide.edu.au
Post: Level 3, Rundle Mall Plaza, 50 Rundle Mall, ADELAIDE SA 5000

Any complaint or concern will be treated in confidence and fully investigated. You will be informed of the outcome.