People
The AKction2 project is made up of four teams, who collaboratively work together on research activities. These include the AKction2 Reference Team, AKction2 Project Team, Chief and Associated Investigators, and Networks.
A2RT | AKction2 Reference Team & Elders
Patient experts, family, and carers
Guide all aspects of project
Elders provide guidance, cultural advice and healing activities to the teams
Kelli Owen
Kelli is a Kaurna, Narungga & Ngarrindjeri woman, mother of five and Mutha (nanna) of two boys. She has lived experience with kidney disease, peritoneal dialysis, haemodialysis, kidney transplantation and being a carer of her son on his kidney disease journey. Kelli has used her personal and family experiences and knowledge of kidney disease to advocate for and support others on their journeys.
Rhanee Lester
Rhanee is an Adnyamathanha woman with family and community ties to Port Augusta and the Northern Flinders Ranges in South Australia. She has lived experience with kidney disease, haemodialysis, peritoneal dialysis, and kidney transplantation. She was invited to speak at a KHA meeting at the Royal Adelaide Hospital where she first connected with the AKction project and the work they were doing, and expressed interest in joining as an ARG member.
Jared Kartinyeri
Jared is a Ngarrindjeri Wiradjuri man from Adelaide with lived experience with kidney disease, haemodialysis and kidney transplantation. Jared was invited to join AKction through Rhanee, and says that the best thing about being a member of AKction is being able to connect with others who have been through the same thing, and to be apart of a group that helps the community.
Shellander Champion
Shellander is an Adnyamathanha, Kuyani, Mirning and Kaprun woman, currently living in Port Augusta, South Australia on Barngarla country. She is the provider for her family and a mother to a young boy living with Autism. With lived experience of kidney disease, Shellander is also an advocate for improving knowledge and education around the NDIS, and breaking down complex government policies into practical ways of working that align with Aboriginal and Torres Strait Islander ways of doing, being and knowing. Her goal is to embed long-term change in the government systems so that Aboriginal and Torres Strait Islander programs and services are driven and led by Aboriginal and Torres Strait Islander people because only we know how to best deliver these to our Mob.
Lili Simpson Lyttle
Lili’s mob is from the Northern Torres Straits Saibai Island (Boigu Island), connecting through to the coastal mainland of the western province of Papua New Guinea (the Beeneh people).
Ramon Gadd
Ramon Gadd is a kidney health advocate with lived experience of kidney disease, dialysis and kidney transplantation.
Marissa Wilson
Christine Franks
Derek Forbes
Trudy Reid
Kidney Warriors
AKction Reference Team members who have returned to the Dreamtime
Inawinytji Williamson (Elder)
Ina grew up in the Anangu Pitjantjatjara Yankunytjatjara or APY lands Fregon, moving to Kaurna Yarta Adelaide to begin dialysis. She is a well-known artist, language teacher and Elder. She often interprets and advocates for other community members in kidney care settings. Ina co-founded the AKction 1 Reference Group with Nari Sinclair, after connection over their shared advocacy work.
Nari Sinclair
Nari Sinclair is a Ngarrindjeri and Yorta Yorta woman, mother, and grandmother. She has lived experience with kidney disease, haemodialysis, and living with complex comorbidities. After chasing down politicians outside Parliament House advocating for better transport options, Nari connected with Inawinytji Williamson, becoming the founding members of the AKction1 Reference Group.
- Matthew Hobbs
- Alice Abdullah
- Richard Brooks
APT | AKction2 Project Team & Students
Uni of Adelaide staff
Carry out / coordinate project
Students completing AKction projects
Kim O'Donnell
Project co-lead / Chief Investigator A
Janet Kelly
Project Lead / Chief investigator
Kelli Owen
Chief Investigator
Rhanee Lester
Chief Investigator
Alyssa Cormick
Research Assistant
Tahlee Stevenson
Project Co-ordinator
Melissa Arnold-Ujvari
Associate investigator, PhD student
Liz Rix
Senior Research Fellow
Brandon O'Connor
Administration Assistant
Students
| Name | Course | Project | Year |
|---|---|---|---|
| Basil Abou Assali | Honours Health and Medical Science | Identifying gaps and strengths in current kidney care. | 2019 |
| Claire Dekuyer | 3rd year Health and Medical Science | Mapped dialysis services in South Australia | 2020-2021 |
| Terry Kai Loon Lau | 3rd year Health and Medical Science | Mapping ‘Typical’ Kidney Transplantation Journey for Adult Indigenous Australian in South Australia | 2021 |
| Ejaz Nijadi | 3rd year Health and Medical Science | Mapped a Typical Health Journey for Indigenous Patients with Chronic Kidney Disease onto Dialysis | 2021 |
| Alyssa Cormick | Psychology Honours | Mapping Journey of an Aboriginal woman with Kidney Disease to identify strength and resilience | 2021 |
| Millicent Baker | Nursing Honours | What is the experience of Aboriginal patients’ following their discharge post renal transplantation in South Australia?’ | 2022-2023 |
| Ayleen Castro | Nursing Honours | Exploring the experience of South Australian Aboriginal Patients following the confirmation of their kidney transplantation until their discharge: a qualitative study’ | 2022-2023 |
| Veda Naidu Mitra | Nursing Honours | What is the experience of Aboriginal people with Chronic Kidney Disease (CKD) during the COVID-19 pandemic? | 2022-2023 |
| Melissa Arnold Chamney | PhD | Cultural safety education in Australia | Ongoing |
| Kelli Owen | Masters | Indigenous Governance in Kidney Health Research | Ongoing |
AKction2 Chief and Associate Investigators
Facilitate collaboration of the project across SA
Listed on the NHRMC Ideas Grant application
Chief investigators
Kim O’Donnell
University of Adelaide, Flinders University
Kim is a Barkindji/Malyangapa woman from far Western NSW, and a Senior Researcher, Aboriginal Health Care Research, Adelaide Nursing School at the University of Adelaide. Kim is a Public Health researcher with extensive understanding and experience working with Australia’s First Peoples in education, health, and governance.
University of Adelaide: Kim O'Donnell Flinders: Kim O'Donnell
Janet Kelly
University of Adelaide
Associate Professor Janet Kelly is a nurse researcher and course coordinator focused on improving health care and outcomes for and with Aboriginal people. She works collaboratively with Aboriginal community members and health and research professionals in urban, rural and remote areas to improve health care experiences and outcomes.
Kelli Owen
University of Adelaide, SAHMRI, SA Health, NIKTT
Kelli Owen is a Kaurna, Narungga & Ngarrindjeri woman, mother of five and Mutha (nanna) of two boys. She is the National Community Engagement Coordinator for the National Indigenous Kidney Transplantation Taskforce (NIKTT), a member of NIKTT Operations Committee, co-chairs the Community Engagement Working Group, Project officer with SA Health overseeing the Kanggawodli renal project with CNARTS (Central Northern Adelaide Renal & Transplantation Service) and is a chief investigator and reference group member of AKction with the University of Adelaide.
Rhanee Lester
University of Adelaide, Flinders and Upper North Local Health Network
Rhanee Lester-Tsetsakos is an Adnyamathanha woman with family and community ties to Port Augusta and the Northern Flinders Ranges in South Australia. She is a chief investigator and reference group member on the AKction Project due to her advocacy for and lived experience with kidney disease since 2004. She works at a local, state and national level in the space of Aboriginal kidney care, providing unique perspectives as a patient-consumer, peer navigator, and a First Nations researcher and a worker in the field.
Samantha Bateman
CNARTS
Dr Samantha Bateman in a nephrologist and general physician, working for the Central and Northern Adelaide
Renal and Transplantation Service at the Royal Adelaide Hospital. As a PhD candidate, based at the South Australian Health and Medical Research Institute, she is researching the benefits and burdens of kidney transplantation for Aboriginal and Torres Strait Islander people through the University of Adelaide. She hopes to improve access to and outcomes of kidney transplantation for Aboriginal and Torres Strait Islander people as this is an area, identified by the community, to be of significant need.
Josée Lavoie
University of Manitoba, Canada
Dr. Lavoie is a professor in community health sciences at the Max Rady College of Medicine, University of Manitoba. She is also director of Ongomiizwin Research Indigenous Institute of Health and Healing. Dr. Lavoie's program of research is located at the interface between policy and Indigenous health services, with a focus on contracting, accountability and responsiveness. She is particularly interested in how western and Indigenous knowledge systems interface in the provision of health services in Indigenous communities, and is actively engaged in collaborations in Australia and New Zealand, and in circumpolar health research.
Associate investigators
| Name | Area |
|---|---|
| Kylie Herman | Nurse Unit Manager, Port Augusta Renal Unit |
| Lisa Jamieson | Associate Professor, Australian Research Centre for Population Oral Health, University of Adelaide |
| Melissa Arnold Chamney | Course Coordinator, Adelaide Nursing School, University of Adelaide |
| Odette Pearson | Associate Professor, Aboriginal Health Equity Research and Strategy, SAHMRI |
| Richard Le Leu | Clinical Research Coordinator, Clinical Research Group, CNARTS |
| Shilpa Jesudason | Staff Specialist Nephrologist and Chair of the Clinical Research Group, CNARTS Project Lead, ANZDATA |
| Stephen McDonald | Director of Dialysis and a Senior Staff Nephrologist, CNARTS Executive Officer, ANZDATA Chair, NIKTT |
| Tamara Mackean | Associate Professor, Flinders University, George Institute NSW |
Networks | Researchers, clinicians, stakeholders
Researchers and clinicians in South Australia
Not listed on the Ideas Grant
May have a role in sub study activities and regional locations
People we collaborate with
- Aboriginal community members
- Adelaide Nursing School, University of Adelaide
- Central Northern Adelaide Renal & Transplantation Service (CNARTS)
- SA Health
- SAHMRI- Wardliparingga Health Equity
- The Aboriginal Chronic Disease Consortium
- Kidney health Australia
- Purple House
- The Transplantation Society of Australia and New Zealand (TSANZ)
- The National Indigenous Kidney Transplantation Taskforce (NIKTT)
- Port Augusta Renal Unit
- Aboriginal Community Controlled Health Services
- Pika Wiya Health Service, Port Augusta
- Ceduna District Health Services
- Ceduna Koonibba Aboriginal Health Services
- Kanggawodli Hostel
- Caring for Australasians and New Zealanders with Kidney Impairment (CARI)
- Community Outreach Dental Program (CODP)
- Lowitja Institute